Lynyrd Skynyrd singer Johnny Van Zant and his family have organized Rockin’ 4 a Cure, a fundraiser for the Alliance to Cure Cavernous Malformation, this Wednesday at Porsche Jacksonville in his hometown of Jacksonville, Florida.
On September 24th, 2024, his 23-year old daughter Taylor had her right side go completely numb and was rushed to the hospital, where tests revealed a rare disease known as a Cerebral Cavernous Malformation (CCM), also called a Cavernoma, in the left thalamus of her brain.
Taylor started a fundraising campaign to help fund research to find a cure, setting a goal of $500,000 for Alliance to Cure Cavernous Malformation. So far she has raised just under $126,000.
Proud papa Johnny says, “My whole point in putting this event together is to bring awareness to Cavernomas and to help fund a cure… There is no funding to help people with severe cases and this disease has a wide range of severity. I have watched so many testimonials of people of all ages, who are just hoping for relief and to live out semi-normal lives! The goal is to make a difference for those who are struggling and have lost all sense of hope.”
In addition to the music and food at the event, there is also a silent online auction with memorabilia donated by Lynyrd Skynyrd, ZZ Top, Styx, Paul Rodgers, Bret Michaels, Carrie Underwood, Lainey Wilson, the Mickey Mantle Estate, Doug Flutie, the Jacksonville Jaguars, Hendrick Motorsports, and many more. You can look at and bid on items at My.OneCause.com, which is also where you can buy tickets for the livestream.
